Mother and Beau
Thursday, January 29, 2009
Gone Too Soon
Mother and Beau
Sunday, January 25, 2009
Can You Say "Ouch!"?
Yes, this is what happens when you have Gamma Knife. Here's how I came to the conclusion that it may be worth a try. As mentioned in a previous post, I was referred to a neurosurgeon who explained my options. These were what I was told: 1. Wait and watch. Annual MRI's to check for growth. 2. Gamma Knife Surgery which is cobalt radiation. This should kill the tumor. It will still be there, but it will not grow because the radiation will kill it. 3. Surgery for removal. Here in Atlanta the only surgical option was a craniotomy which is about 9 hours of surgery with about a six month recovery. Also, there are so many things that can go wrong, there are too many to list here.
I came to the conclusion rather quickly that the Gamma Knife was the less invasive and my best option. I scheduled the treatment for October 31, 2003. We had to be at the hospital by 6 AM for all the paper work.
We arrived at the appointed time and I was taken into the prep room where an IV was started and I was hooked to monitors. They washed my head in alcohol. Now, honestly, that doesn't sound so bad, does it? Well, try it in a room that is about 60 degrees! It felt like ice. The nurse was so kind. He kept apologizing and said it wouldn't last long, but the area had to be prepared and as sterile as possible.
Next came the frame. The contraption that you see in the photos. And, yes, it is screwed down to my skull. They gave me lidocaine injections at the site to help numb the area, but at my first "ouch", out came the "good" drugs. They took the photos because the nurse said that she thought all of your family should know exactly what you went through. Sometimes the medication is just too good to remember.
I was then taken to have an MRI. It was the sweetest one that I've ever had because I was totally unaware of what they were doing. I was then taken back to the Gamma Knife room and placed on the table while the neurosurgeon, radiologist, and nuclear physicist mapped my brain coordinates, so that I would be getting the radiation on the exact right spot.
The radiation last for about 45 minutes and since my head was bolted to the machine, I just laid there and watched the Today show. (I always like to see what the cast is dressed up as on Halloween anyway, so I stayed entertained.)
I was then taken to a recovery room to get my sea legs back. After the procedure, my head was bandaged like I had had major surgery and while I was being rolled down the hall, I kept saying "Trick or Treat". Everybody would just laugh and I kept wondering what they were laughing at.
Kaye (my sister) and John were waiting for me. They asked me how things went to which I replied. "It was really good! Matt Lauer was dressed as J Lo and Al was dressed as P Diddy." They had the strangest looks on their faces.
I returned home and it took a few days to recover, but for the moment all was well.
Thought for the day:
Never say never and never say always!
Saturday, January 24, 2009
My Most Spiritual Moment
My most spiritual moment ever occurred in June, 2003 just before I was diagnosed the the brain tumor. This happened as the result of a really sad tragic illness. One of our church members, Ruth was diagnosed with a brain tumor. A really bad kind. She had surgery and was able to continue her life for a couple of years with no problems. Then in December, 2002, she started feeling bad and, at the suggestion of her husband, had another MRI even through the one that was done in June was fine. When she had the one in December, it showed that the tumor had returned with a vengeance and another surgery had to be performed. She came through the surgery, but it was apparent that she was not going to be able to beat it this time. In January, 2003 she was moved into a beautiful Hospice facility with beautiful surroundings and around the clock care.
Thursday, January 22, 2009
Did I mention that we bought a home?
Yes, right in the middle of getting diagnosed, we purchased a home. It all started in July, 2003 when I saw a picture of our home in one of those little real estate books that you can pick up at the grocery store. I thumbed through it and found this lovely home. It was on 12 acres in a rural area about one hour from where we lived. I called to ask a few questions and when John found out that there was a creek at he back of the property he wanted to go take a look. We set up the appointment for that Friday.
We had talked many times about buying a home with some land, but we had to wait until John was close enough to retirement that if he was asked to come back into the office and stop traveling, he could manage the commute until retirement time. We are 62 miles one way from his office. As long as he's in his present position, no problem because he works and travels from home.
We arrived at the address and started down a 1000 ft. driveway and when we rounded the corner and saw the house, our mouths dropped open and we knew we had found it. We tried not to get too excited because you just never know what lies behind a front door. We were not disappointed! The prior owner, and I am really happy about this, was a clean freak and the house was spotless. Neither of the couple smoked so that gave us a really big sigh of relief. We returned home and decided this was it. We needed to make an offer.
We contacted a realtor because this was such a big investment, we needed to be sure that our interests were protected. The owner told the realtor that she was going to be out of town, so no need to hurry because she would not be in town. The realtor met with us, wrote up the offer and said she'd call on Monday to present it. Imagine my surprise when the realtor called and said that her plans to go out of town had been cancelled and she had already excepted an offer. We were devastated!!!
We decided to make a back up offer anyway. We wrote the new offer and we were luckily in a position that we did not have to sell our existing home, so there was not a contingency clause. The other buyer had to have a contingency, so at that point, the owner exercised her right to the "kick out" clause which means that she contacted the first offer to see if they could remove the contingency. They could not, so we got the house! This took an unbearable 48 hours. We decided to close the last day of August, 2003.
We moved into the house in October, 2003. This all occurred at the same time as the diagnosis.
There is one thing that happened that still makes me shake my head. About two years before we found the house, we were on a trip and got to the airport a little early. I purchased a book of house plans and found a home that I thought would be just right for us. After we moved in and I was unpacking, I found the book with the bookmark on the page of my selection. That's right! It was this EXACT house!!!!!
Was it meant to be?
Thought for the day:
No success can compensate for failure in the home.
Wednesday, January 21, 2009
The Diagnosis
Cruise to Hawaii
2003
Tuesday, January 20, 2009
The Love of My Life -throughout eternity
Monday, January 19, 2009
He Ain't Heavy - He's My Brother
Thursday, January 15, 2009
MRI's and other forms of torture
Wednesday, January 14, 2009
What led to the discovery
Back to the brain tumor story. In 2002 and 2003 I had a lot of dizziness. I would go to the doctor and complain of dizziness and he would check my blood and say that everything seemed to be okay. During early 2003, I was diagnosed with a sinus infection and started the usual round of antibiotics. It went away. About a month later, the same thing happened. I went back to the doctor and it was at that time that he decided I needed to see an Ear, Nose, and Throat doc.
The tests were unusual. First, the hearing test. That was not unusual at all, but the tests that followed were quite an experience. (My hearing is normal, by the way.) Next, I was called into an examining room and I sat on the table facing what looked like a metal bar. The lights were turned out and one eye was covered and I was told to follow the light with my eye. First, it went up and down, then it jumped randomly about. This was done, of course, on both eyes. Next, came a really fun test. I lay down on the table and the technician says, "I'll get a trash can, just in case you throw up". I said "WHAT?" Yes, I heard her right. She says this often makes people sick, especially if they are prone to motion sickness. (I did just mention that I went on a cruise, didn't I?) What happened next was very uncomfortable. First, warm air was blown into my left ear for about 20 seconds, followed by cold air. It really makes the room spin, but I didn't get sick, just queasy. Now that you know what's going to happen, yep, you're right, it's done to the right ear. Not a good day!
Of course, I was told to make an appointment for the next week and the doctor would go over my test results with me. When I went back for that appointment, he said there were some abnormalities on the right side and he thought an MRI was in order, so he made the appointment for the MRI with contrast for the next week.
Thought for the day:
My Mother's Love for animals
This is a photo that was professionally taken of Baby. My Mother had Baby before I was born, so it was the early 1940's.
Her love of animals is to this day unmatched by anyone that I know. I grew up living behind the grocery store that my Daddy owned. There were two wooden doors with two screen doors in front of them. People in the neighborhood knew Mother would take in animals, so it was never a surprise when Daddy would go to open the store in the early morning hours and find some little injured or orphaned critter stuck between the screen doors and the wooden doors. I can remember hearing him yell as I would be getting ready for school, "Dammit, Marie! Somebody has left you another animal!" She would take the animal in, give it the medical attention it needed and then find it a home. She was the only person that I knew that carried long gloves and a blanket in the trunk of her car just in case she happened upon an animal that needed help.
I'll add some of the stories of my childhood pets in some following posts and more pictures.
Thought for the day:
There are two things to aim at in life; first, to get what you want; and, after that, to enjoy it. Only the wisest achieve the second. Logan Pearsall Smith
Tuesday, January 13, 2009
Mother
Today is the day that I think of my Mother. She was definitely one of a kind. I would describe her as the original Steel Magnolia. Strong, never waivering. I don't remember her crying more than once or twice in my life. She instilled in me my strength and resolve.
Here are some of my memories:
She was an excellent cook. She would put Paula Deen to shame. We had very elaborate meals prepared from scratch every single day. Our Sunday meal was like most people's holiday fare. Daddy was a hunter and she cooked what he brought home. She often said if it "walked, crawled, or flew", he'd want her to cook it. We had many exotic foods to try as well as the usual southern fried chicken, fried fish, hush puppies, slaw, mashed potatoes, and every kind of vegetable that could be grown. There were at least four or five different kinds of peas alone. I do plan to share her recipes and that of my grandmother's someday. Oh, and the biscuits. There is nothing to compare them to - not even Cracker Barrel.
I've decided to share more of the memories that I have in small snippits. Topics with pictures. So, more to come later.
Mother had many sayings. One of my favorites was:
There is no greater love than the love a Mother has for her child.
Monday, January 12, 2009
Wonky Head
What is wonky head, you ask. Well, it is a term coined by other people that have acoustic neuromas (or ANer's) that means any abnormal feeling going on in your head. This brings me to the point. My main symptom is wonky head. Sometimes it is vertigo, or dizziness. Sometimes it feels like an earthquake is going on. Sometimes it feels like a wave is washing over me. This happens somewhere between 15 and 20 times per hour. My body is constantly trying to adjust. This, in turn, brings on fatigue. It is very tiring to try to balance all day long and even when you are laying down, things can be out of whack.
I'm going to start from the beginning a tell the whole story. I know many people that suffer from this. Many have decided to "wait and see", some have radiation (there are many different types to choose from), and then surgery. All of these can have different outcomes and whatever decision is made can only be made by the patient. One day I want this over and the next day I'm scared to death! The decisions are not easy because in only some instances is it life threatening. When it is, no problemo! The decision is made. But, for those of us that fall into that no man's land of wanting to be better, but possibly coming out worse, really have a tough time working through the possiblities. As I break down my journey, you will see that I have tried many different things, all hoping for a miracle. Not so fast! There's more to it than that. Follow my story as I slowly write it and if it helps just one person, all the time spent will be worth it.
Thought for today:
Happiness has to be practiced, like the violin.
Sunday, January 11, 2009
Decisions, decisions, decisions
I was diagnosed with an acoustic neuroma in August, 2003 and this is my story with history and other fun things thrown in. I have two purposes for this blog. One: my children have asked for my history, and two: some of the trials that I have gone through might just help someone else. The journey has been difficult and I have kept it to myself, but now is the time to share. Tomorrow I will have an appointment with my local ENT doctor for a baseline hearing test and to discuss his thoughts on my upcoming brain surgery. More on this later.
Thought for today:
If you have your health, you have everything.